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Saturday, July 19, 2014

Little Aubrey Starr's Condition Worsens as Doctors Undecided as to What to Do

Hope PHor Aubrie Starr
17 July
Have to leave here in the morning at 6:30am to take Aubrie to the specialty children's hospital to see her cardiologist and PH team. She had some episodes of passing out over the weekend, a couple nights of low stats and has been exhausted more than normal. Hopefully we can finally find out if anything has changed with her Pulmonary Hypertension. I will keep everyone posted!!

Hope PHor Aubrie Starr
18 July
Aubries drs feel that with her condition being so difficult to truly know what is going on all the time it is in our best interest to get a second opinion from a lung transplant specialty team. They will begin sharing notes and information with a team in Chapel Hill. It may be that she is fine where she is right now or it could mean she needs a central IV line or a sub q line. It may be that a transplant is best. Nothing has been decided they are just seeking a more experienced decision. It does appear her condition may progressing. As I am made aware of thing with her care I will let all of know as well. Thank you all for being such wonderful prayer warriors for our family! God's got this, he has a plan laid out etched in stone. The Lord is our strength!

Hope PHor Aubrie Starr
3 hours ago
Aubrie has been so tired today and she hasn't done much except ride in her car that I push and get carried around every where.  She was so exhausted she went to sleep for her nap around 1:00pm and didn't get up until 4:30pm. She was already back to sleep at 9:00pm. Pray for her body to get the rest it needs. With God all things are possible!

The official page for Aubrie Starr a patient diagnosed with pulmonary hypertension and branch pulmonary artery hypoplasia. Please pray for Aubrie Starr!

https://www.facebook.com/hopephoraubriestarr?fref=nf