Day 22 We are in the fight for our lives here...
Every Breath that we take is harder than the last if we are doing anything such as physical, and for some of us it can be just as little as talking that takes our breath away.
Yes medicine can make us stable for a while or even help us improve slightly...but it will never cure us...
Even a lung transplant is not a cure for us. It is just a band-aid to hopefully give us more time with our family and friends.
Help us find a cure!!
Help us get our bills through Congress!!
Help us get our Disease known by more people!!
I want to see the World Periwinkle next November!!
COLOR THE WORLD PERIWINKLE DAY